Where do we go from here?

So as I've already mentioned several times, I have a confirmed Cushing's recurrence. However, this time around things aren't as straightforward. You see, although all my blood tests and urine collections are showing increased cortisol, nothing is visible on the MRIs which isn't good. It's not good because if the neurosurgeon cannot see anything on the MRI he doesn't know what his "target" is and although he could just go in and identify the tumour cells visually (apparently they look different to healthy cells), I'm not sure I trust him THAT much...

So this is where I'm at right now: my endo and other doctors will be discussing my case in their multi-disciplinary meeting to decide what the next course of action should be. At that meeting there are several key doctors such as endocrinologists, neurosurgeons and radiotherapists. As I mentioned in a previous posts there are several treatment options for Cushing's disease including neurosurgery, radiotherapy, adrenalectomy and medication. Therefore they will all be discussing what they think is most suitable considering the details of my case. 

Being ME

Hey blog readers!

Hopefully some of you watched the videos I posted from the US. I only ended up making 2 which is obviously not very impressive and they were very short but turns out I am much more camera shy than I thought! I was also having so much fun and was just so busy that I thought "I'm sure my blog followers will understand"...

I got back from the US on Sunday the 23rd after nearly 3 weeks of sightseeing, connecting with friends and enjoying life! I really didn't want to come back. I mean, I missed my place and was starting to get a bit tired of living out of a suitcase but I have to admit, it was nice just being carefree and enjoying myself. Now that I'm back, it's back to reality and it's not easy....

US vlog

I have decided to attempt to document my US trip using video blogs or vlogs. I will try and upload a video to my YouTube account (CushieSteph) every day or at least whenever I have access to the internet. The new videos should show up here on the blog in the little video box on the left hand side. But the easiest thing is to subscribe to my YouTube channel: www.youtube.com/user/cushiesteph

I'm really looking forward to this trip as I will not only be attending my friend's wedding and seeing my sister and a friend of mine who recently moved to NYC, but I will also be meeting up with some fellow Cushies.

I can't wait to meet more women who have been through and are still going through the hell that I endure. I hope that we can share and learn from each other.