Welcome to my blog! You can start by getting to know a bit more About me or for a more detailed explanation of how I was diagnosed, have a read of my posts The Journey to Cushing's Syndrome and Part II the saga continues. Bienvenue sur mon blog! Vous pouvez commencez par decouvrir Mon Histoire avec Cushing's

Sunday 17 April 2011

My so-called friends

Today I've finally decided to blog about something which has been bothering me for some time but have only mentioned to my therapist and parents... until now!
In the last few months and especially in the lead up to my impending move, I have started to complain to my "friends" about other, so-called "friends". In reality this has been bothering me for a long time now but only really got highlighted around the time of my surgery and in the last few weeks.
I'm talking about my utter disappointment with the lack of compassion, commitment and support from people who I consider(ed) "friends".
Now I don't want to over use the whole quotation marks "thing" but I really want to stress the fact that this applies to people whom I'd considered friends and felt I could trust and count on.
I think we've all experienced disappointment in our lives and are all too well aware that the only person you can really count on is yourself (and God perhaps?) but does that make it ok? In my view, it doesn't!

Friday 8 April 2011

Hakuna Matata

Today is Cushing's awareness day!!!

It gives me great joy to be able to report on this day that I am celebrating my 200th day of being Cushing's (nicotine, caffeine and alcohol) free.
Though today is a great day for me because the sun is shining and I feel good, it is important to remind people that Cushing's is a terrible, complex and deadly disease that is often overlooked.
Although today I can report that the results so far suggest I have been cured, things are never so black and white.
For those of you who read my blog regularly, you will know that a few months ago, only 4-5 months after my pituitary surgery, I was already afraid that my Cushing's was back because I'd gotten a high ACTH and Cortisol level on a blood test.