Welcome to my blog! You can start by getting to know a bit more About me or for a more detailed explanation of how I was diagnosed, have a read of my posts The Journey to Cushing's Syndrome and Part II the saga continues. Bienvenue sur mon blog! Vous pouvez commencez par decouvrir Mon Histoire avec Cushing's

Friday 21 December 2012

2013, a promising year

It was my birthday yesterday! I turned 28. I can't believe I'm already edging closer to my 30's. I honestly feel like I should get a refund on my 20's! But I'll save my ageing rant for when I actually turn 30...

I wanted to let you know how my appointment went. On Tuesday the 18th I met with my endocrinologist, a specialist nurse and a neurosurgeon. As you may recall, I've mentioned in previous posts having several questions I wanted to ask regarding my treatment options. For example, why was I not being offered medication or an Adrenalectomy? So on Tuesday I finally saw my usual doctor and was able to ask all the questions I wanted. In fact, I was really impressed by how informative and sensitive my endo and the neurosurgeon were. They both took the time to explain their findings to me and why they felt that a 2nd pituitary surgery was the best way forward.

Thursday 13 December 2012

Postponed

For those of you who follow my blog you may be wondering why I haven't given you an update following my appointment. Well it's because my appointment was postponed to the 18th of December. They actually told me a little while ago but I forgot to post it on my blog.
Thanks to those of you who expressed concern and asked about whether I had received any news yet.
I will definitely provide you all with an update after the appointment.

In the meantime, you'll be pleased to know that I'm doing quite well. I've been super busy working on several projects for Genetic Alliance UK, a charity with which I have been doing work on and off for since 2009. It's interesting work involving research and is for a great cause. They represent patients and patient organisations concerned with genetic diseases. They also have a project called Rare Disease UK which is specifically concerned with rare diseases. So you can imagine why I am so happy to work for this charity and thrilled that I am able to contribute something useful.

Also, Pepper (my beautiful greyhound) is settling in well. She's starting to show her personality a little more but is still a very chilled, easy going dog who adores cuddles and food. They do say dogs resemble their owners....

So I leave you with some pictures of my beautiful new best friend: