Welcome to my blog! You can start by getting to know a bit more About me or for a more detailed explanation of how I was diagnosed, have a read of my posts The Journey to Cushing's Syndrome and Part II the saga continues. Bienvenue sur mon blog! Vous pouvez commencez par decouvrir Mon Histoire avec Cushing's

Friday 21 December 2012

2013, a promising year

It was my birthday yesterday! I turned 28. I can't believe I'm already edging closer to my 30's. I honestly feel like I should get a refund on my 20's! But I'll save my ageing rant for when I actually turn 30...

I wanted to let you know how my appointment went. On Tuesday the 18th I met with my endocrinologist, a specialist nurse and a neurosurgeon. As you may recall, I've mentioned in previous posts having several questions I wanted to ask regarding my treatment options. For example, why was I not being offered medication or an Adrenalectomy? So on Tuesday I finally saw my usual doctor and was able to ask all the questions I wanted. In fact, I was really impressed by how informative and sensitive my endo and the neurosurgeon were. They both took the time to explain their findings to me and why they felt that a 2nd pituitary surgery was the best way forward.

Both my endo and the surgeon did concede that with this surgery I ran the risk of losing some pituitary function but they maintained that they still felt this was the best option. I know that there are no guarantees in life and sometimes you just have to trust that the people in charge of your health have your best interest in mind and will do all they can to help you. I am confident that I am in good hands as I am being treated at one of the best hospitals in the UK. I also know that my follow up care will be good so all I can do now is pray and hope for the best.

I do not have a fixed date for the surgery yet but it will probably be happening end of January, early February. A 7-8 week wait isn't too bad considering it's the NHS. It also means I might be able to complete 2 modules of my DCPsych course before having to take a break for recovery. We'll see, I'm discussing my options with the course administrators now.

So 2013 will start quite eventfully but hopefully it means that this time next year I'll be cured and maybe a few kilos lighter? Is it too early to get started on my 2013 letter to Santa?

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