Welcome to my blog! You can start by getting to know a bit more About me or for a more detailed explanation of how I was diagnosed, have a read of my posts The Journey to Cushing's Syndrome and Part II the saga continues. Bienvenue sur mon blog! Vous pouvez commencez par decouvrir Mon Histoire avec Cushing's

Monday, 9 September 2013

Fourth time lucky?

Hey all! So it's been a while since I posted (seems like I've been saying that pretty much every post!) but I've been pretty damn busy. Been working hard at uni and freelancing for my charity. Plus, I've actually been having something which resembles A LIFE!!! Now don't get too excited there folks, it's nothing to write home about (though I guess I found it worthy enough for blog writing) but it's a hell of a lot better than what I had before.
Basically in the last few months I've been really feeling better energy wise. The fact that I've lost over 20kgs might have something to do with it but I also think it's thanks to the correct medication dosage I'm now on. If you remember the doc started me on cortisol lowering meds and after surgeries 2 and 3 messed up my pituitary I've also been replacing a whole host of other hormones. Although it's a pain having to take so many pills, it's totally worth it. I'm able to walk an average of one hour every day, I'm not sweating as much and my mood has been pretty stable. All in all, I've been feeling pretty awesome.

Sunday, 19 May 2013

Embrace the highs and push through the lows

So it's been a pretty tough week with a follow-up appointment on Tuesday where I found out I had to have all my pituitary removed, but today has been a good day so I decided it would be a good day to post.
I often find that if I try to blog when I'm feeling down, all that comes out is sadness and venting. I don't like to put too much negativity on my site. Not to say that Cushing's isn't a bitch to deal with and the reality is that there's a lot of negativity involved. But I think that the other Cushies out there who might read this have enough pain and suffering in their lives that they don't need to hear all the doom and gloom in mine too.
I think it's important that when I feel good, I share my positivity and good mood with others. After all, they say laughter is contagious so maybe I can send my good vibes out too!?

Tuesday, 16 April 2013

Groundhog day

Monday last week, the 8th of April was Cushing's awareness day. Unfortunately because I was traveling from London to Hong Kong I was unable to write a special post or even put anything on Facebook. By the time I landed in Hong Kong it was late at night and I was so exhausted that I just couldn't bring myself to write anything. But as one of my fellow cushies pointed out, EVER DAY is Cushing's awareness day for us!! Because we suffer from this terrible disease every single day. In the last 10 or so years I've been suffering from symptoms, not a single day has gone by when I have felt "normal".