Out of sight, out of mind?

So it's been a week since my last post. Did you miss me? I promised that even thought I wouldn't blog every day I would still keep you updated so here's what's happened in the last week. (Quite a lot actually!)

The appointment on Monday went well. I met a very nice neurosurgeon who took the time to listen to me and seemed pretty knowledgeable. The bad news: the MRI was clear. You might be wondering why that's bad news, well because if the tumour isn't on my pituitary again it means it could be somewhere else which isn't exactly a very pleasant idea. I could have a tumour on my adrenal glands or anywhere else in my body.

But there is a chance of what's called a false negative which basically means that even though the MRI is clear there could still be some tumour tissue left. Even the smallest, trace amount could be enough to cause excess cortisol.

So I'm having more blood tests done and there are a few options for me at this stage like an MRI of my adrenals, an IPSS which is a blood sampling technique or straight up surgery again since tumour tissue is apparently easy to identify visually. I'm not gonna bother explaining everything to you right now because basically I've decided not to push things here in Hong Kong since I'm moving back to London.

I'm putting my health on a shelf, so to speak, and just focusing on my last few months here. Once I'm back with my usual endo I'm sure she'll have many options and solutions for me.

In other news, I'm in the final stretch of my Masters program and this week I submitted two of my applications for a professional doctorate. It is basically training to become a counselling psychologist. I'm very excited that I'm still moving on with my life and maintaining high career ambitions, regardless of what's happening with the Cushing's situation. 

This week was also the beginning of a new YouTube project. As you may recall, last post I informed you that I had started my own channel. Well now a few of us have gotten together to create a channel called CushiesUnited so that we can all vlog about our journey. I've just made my first introductory video which I have posted on my own channel and should appear on the group one soon.

So please check all of these things out and support our Cushie Cause!!